The FTLD Module was implemented in 2012 and contains data collected on a subset of UDS participants. The Module is aimed at evaluating those suffering from or at risk for any of the forms of frontotemporal lobar degeneration.
Essential documents
Initial Visit (IVP)
Follow-up Visit (FVP)
Forms Packet
The full packet, containing all data collection forms. Alternatively, individual forms can be downloaded below.
Coding Guidebook
The guidebooks provide detailed, annotated explanations of each form on an item-level basis, with instructions, operational definitions, and references.
Data Element Dictionary
In a compact format, the DEDs list all the variables and provide a detailed description, including data type, length of field, allowable codes, and information on skip patterns and blanks.
Data Template
Templates are designed to help ADRC Data Cores develop software for submitting UDS data to NACC via ASCII batch file submission.
