Forms and documentation
The Uniform Data Set version 4 is now available for use at the ADRCs. The UDS contains longitudinal data, collected since 2005 during standardized annual evaluations conducted at the NIA-funded Alzheimer’s Disease Research Centers (ADRCs) across the country. Participants in the study represent the entire Clinical Core enrollment of the ADRCs, with cognitive status ranging from demented to mild cognitive impairment to cognitively normal. A subset of UDS participants are also evaluated with one of the additional sets of diagnosis-specific data-collection forms, the FTLD Module or the LBD Module.
For clinicians planning to administer the UDS, training materials are available.
For additional information on the development of UDSv4, see the UDSv4 Updates Page.
This overview of NACC data outlines UDS study population, collection methodology, and up-to-date participant statistics.
To use NACC forms in research outside of the ADRC program, please submit a Permission Request.
UDSv4 forms are currently only available in English. Please check back for Spanish and Chinese versions coming soon!
Essential documents
The Researchers Data Dictionary for the UDS is intended as the first and primary resource for those analyzing NACC clinical and demographic data. Updates to the RDD for UDSv4 are coming soon. See also this overview of the data available at NACC.
Individual forms
| Initial Visit (IVP) | Follow-up Visit (FVP) |
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