2024 Spring ADRC Meeting

The Spring 2024 ADRC Meeting was held in a Hybrid format, online and in-person in Austin, TX. Links to slides and video recordings are below.

Biomarker Core Session#

Introduction

Donna Wilcock, PhD, MS

Working Group Update: Best Practices

Timothy Van Meter, PhD, Thomas Karikari, PhD

Working Group Update: Data Quality & Data Variables

Kristen Russ, PhD, Fanny Elahi, MD, PhD

Generalizability of Fluid Biomarkers

Suzanne Schindler, MD, PhD

Biomarkers of Alpha Synuclein Pathologies

Allison Kraus, PhD

Imaging Core Session#

Imaging Core Steering Committee Updates

Ann Cohen, PhD, Emily Rogalski, PhD

SCAN Updates

William Jagust, MD

CLARiTI Updates

Sterling Johnson, PhD

Panel: Leveraging Clinical & Research Imaging Data in a New Era of AD Treatments and Increased Engagement of Diverse Populations

Shannon Risacher, PhD, Gil Rabinovici, MD, Adam Brickman, PhD, Duygu Tosun, PhD

CLARiTI Meeting#

Updates on Protocol and Logistics

Sterling Johnson, PhD

Updates and Resources from the CLARiTI Inclusion Core

Monica Rivera Mindt, PhD, Ozioma Okonkwo, PhD, Dorothy Edwards, PhD

Disclosure Practices at ADRCs - Survey Results

Annalise Rahman-Filipiak, PhD

CLARiTI Disclosure Consultation Team - Introduction and Goals

Lindsay Clark, PhD

Visual Interpretation Core: What to Expect

Gil Rabinovici, MD

Closing

Elizabeth Mormino, PhD

Directors Session Part 1#

Introduction

Sanjay Asthana, MD

NIA Update: NIA

Amy Kelley, MD, MSHS

NIA Update: Division of Neuroscience

Jennie Larkin, PhD

NIA Update: ADRC Program

Cerise Elliott, PhD

NIA Update: Office of Legislation, Policy and International Activities

Brian Gray, PhD

NACC Update

Sarah Biber, PhD

NCRAD Update

Tatiana Foroud, PhD

NIAGADS Update

Li-San Wang, PhD

Directors Session Part 2#

Introduction

Sanjay Asthana, MD

Basic Biology of TDP-43

Margaret E. Flanagan, MD

Advances in Clinical Definitions and Biomarker Development for LATE

David Wolk, MD

Tackling the Landscape of Selection Bias and Representation in AD/ADRD Research: WHO We Study Matters

Rachel Whitmer, PhD

Generalizability - Real World Data / EHR

Robert M. Califf, MD

REC Session#

REC Activities and Projects

José E. Cavazos, MD, PhD, Hussein Yassine, Susy Stark, PhD, Minerva M. Carrasquillo, PhD

Supporting Diversity Workgroup Report

Minerva M. Carrasquillo, PhD

REC Poster Session

NACC Session#

Welcome

Sarah Biber, PhD

NACC Modernization & UDSv4 Updates

Sarah Biber, PhD

UDSv4 & NACCID Pilot

Jess Welsch, MBA

UDSv4 Onboarding & Training Resources

Sarah Gothard

UDSv4 Transition Strategy - Panel and Q&A

Sarah Biber, PhD (Moderator), Greg Jicha, MD, PhD, Ari Bhaumik, CCRP, Jeffrey M. Burns, MD, MS, Sudeshna Das, PhD, Sarah Tomaszewski Farias, PhD

Clinical Core Session#

Upcoming UDSv4 Resources

Aimee Pierce, MD

What Do We Know So Far? Current Disclosure Best Practices and Outcomes

Annalise Rahman-Filipiak, PhD

Future Directions in Disclosure Practices

Lindsay Clark, PhD

Disclosure Case Discussion

Nathaniel Chin, MD

Participant Disclosure Panel

Carol Turner, Col Joellen Deberg, Col Oak Deberg, PhD

Administrators Session#

Administrators Steering Committee Update

Ari Bhaumik, CCRP

Change Management and Performance Improvement: The Alzheimer’s Association Approach to an Evolving Alzheimer’s and Dementia Landscape

Joanne Pike, DrPH

ADRC Expert Panel - Emerging Areas of Research

Sharon Letchworth, PhD, Emily Little, MPH, Krista Moulder, PhD, Leslie Dunn, MPH, Sarah Biber, PhD, Ari Bhaumik, CCRP