2024 Fall ADRC Meeting

The Fall 2024 ADRC Meeting was held in a Hybrid format, online and in-person in Boston, MA. Links to slides and video recordings are below.

Data Core Workshop#

Introduction

Iris Leng, MD, PhD

Multimodal Data Integration via Mediation/Path Analysis

Yi Zhao, PhD

Unbiased and Robust Analysis of Co-Localization in Alzheimer's Disease Research Images

Hui Zhang, PhD, MA, MS

Applications of Joint Models for Assessing Attrition Bias When Studying Cognitive Trajectories

Rachel Stuckwisch, MPH, MS

Exploring Novel Functional Data Analysis and Machine Learning for Eye-track in Preclinical AD

Jingjing Zou, PhD

Midlife and Later-Life Social Risk Scores (SRSs) Modify the Effects of Apolipoprotein E (APOE) ε4 on Alzheimer's Disease

Xian Wu, PhD

Bayesian Multi-modality Disease-progression Models of Dementia

John Kornak, PhD

Development and Validation of Natural Language Processing (NLP)-Based Risk Prediction Model for Cognitive Impairment in Geriatric Patients

Laili Soleimani, MD

What EDCS Workgroup Has Accomplished

Sarah Biber, PhD

UDSv4 and NACCID Pilot Report Outs

Jess Welsch, MBA

Crosswalk and Harmonization

Chad Murchison, PhD

ORE Core#

Introduction & Committee Updates

Dorothy Farrar-Edwards, PhD

Retention Pathway - Addressing Challenges-Longitudinal Study Participation

Darby Morhardt, PhD

Strategies for Retaining Diverse Participants: Building Relationships at the Individual, Family, and Community Level

Annaise Rahman-Filipiak, PhD

Community Perspectives on Effective Partnerships

Rev. Dr. Alex Gee

Panel Discussion

Darby Morhardt, PhD, Rev. Dr. Alex Gee, Annaise Rahman-Filipiak, PhD, Monica W. Parker, MD

Special Session on Brain Donation#

Introduction & Committee Updates

Brittany Dugger, PhD

Brain Donation

Crystal M. Glover, PhD

Panel Discussion

Crystal M. Glover, PhD, Nancy Cherico, PhD, Tish Hevel, Katie Brandt, MM, Arline Faustin, MD, Darby Morhardt, PhD

Neuropathology Core#

What's Happening in the ADRC Neuropathology Core

Brittany Dugger, PhD

Brain Donation Survey Results

Alifiya Kapasi, PhD

Culture-Centric Narrative as a Tool for Messaging about Brain Donation

Jennifer Lingler, PhD, RN

Enrollment into Brain Donation in a Diverse Cohort of Oldest Old - Lessons Learned from the Life After 90 Study

Rachel Whitmer, PhD

New Investigator Award Program Luncheon#

Welcome to 2025 New Investigator Award Program (NIAP)

Heather Snyder, PhD

REC Mentorship Program Overview

José E. Cavazos, MD, PhD

Introducing our Speakers: NIAP Awardees

Sarah Biber, PhD

Application Strategies for NIAP

Yuriko Katsumata, PhD

NACC New Investigator Support: From Genotype to Genetic Program

Corey McMillan, PhD

Directors Session Part 1#

Introduction

Sanjay Asthana, MD

NIA Update

Richard Hodes, MD

Division of Neuroscience Update

Amy Kelley, MD, MSHS

ADRC Program Update

Cerise Elliott, PhD

NACC Update

Sarah Biber, PhD

NCRAD Update

Tatiana Foroud, PhD

NIAGADS Update

Li-San Wang, PhD

Directors Session Part 2#

Introduction

Sanjay Asthana, MD

Pathology Validation of AD Biomarkers vs Neuropathology

Renaud La Joie, PhD

Significance of Diversifying ADRC Cohorts

Rosie Curiel Cid, PsyD

Advances in biomarkers of Alpha-Synuclein

Kathleen Poston, MD, MS

Panel: Understanding Mixed Pathologies, Translation-Clinical Practice

Gil Rabinovici, MD, Renaud La Joie, PhD, Rosie Curiel Cid, PsyD, Kathleen Poston, MD, MS, Ganesh Babulal, OTD, PhD, Astrid Suchy-Dicey, PhD, Edward Lee, MD, PhD

NACC Session#

Welcome

Walter Kukull, PhD

Timeline & Approach

Sarah Biber, PhD

General Resources

Jess Welsch, MBA

Clinical Resources

Cindy Carlsson, MD

EDC System Resources

Sudeshna Das, PhD

What's New and Where Are We Headed?

Sarah Biber, PhD

ADRC Portals: Empowering ADRCs with Streamlined Data Submission and Access

Sarah Biber, PhD

Launching the New NACCID System

Sarah Biber, PhD

NACC Data Front Door: A One-Stop-Shop for ADRC Program Data

Sarah Biber, PhD

The ADRC Biomarker Steering Committee and Workgroups: Establishing guidelines and standards for fluid biomarker data collection and sharing for the ADRC Program

Kristen Russ, PhD

Capturing ATN across the ADRC Program

Gil Rabinovici, MD

UDSv4 dVoice and Q&A

Rhoda Au, PhD

SCAN Update and Q&A

Bill Jagust, MD

Data Core Session#

NIAGADS Update - Engaging ADRC Researchers and Understanding Genetic Data Analysis Needs

Li-San Wang, PhD

Data Concierge: Making Center Data Findable and Available-the ADRD Research Ecosystem

Michael Lutz, PhD

Novel Approaches-Sharing Data and Specimens in Alzheimer's Disease Clinical Trials

Gustavo Jimenez-Maggiora, PhD, MBA

Data Support Drives Outreach Recruitment and Engagement Success

Tina Lewandowski, EdD, Jeffery M. Burns, MD

Leveraging Real-time Data Platforms-Advance Data-Driven Recruitment

Kelsie Full, PhD, MPH

CTF Session#

UDSv4 Pilot Survey Results & Timeline

Jessica Culhane, MS

UDSv4 Pilot Panel

Suzanne Schindler, MD, PhD, Justin Barber, MS, Anna Campbell Sullivan, PsyD, Nicole Oliveira, Eric Steinberg, NP

UDSv4 Neuropsych Battery Updates

Andrew Saykin, PsyD, Lisa Barnes, PhD

CTF Technology Workgroup Updates

Sudeshna Das, PhD, Sarah Biber, PhD

CLARiTI Session#

Scientific Impact of CLARiTI

Elizabeth Mormino, PhD, Sterling Johnson, PhD

Infrastructure: Updates & Impact

Sarah Biber, PhD

Study Updates

Erin Chin

CLARiTI National Inclusion and Engagement Plan

Ozioma Okonkwo, PhD