About NACC

The National Alzheimer's Coordinating Center was established in 1999 by the National Institute on Aging/NIH to facilitate collaborative research. Using data collected from NIA-funded Alzheimer's Disease Research Centers (ADRCs) across the United States, NACC has developed and maintains a large relational database of standardized clinical and neuropathological research data. In partnership with the Alzheimer's Disease Genetics Consortium (ADGC), the National Centralized Repository for Alzheimer's Disease and Related Disorders (NCRAD), and the NIA Genetics of Alzheimer's Disease Data Storage Site (NIAGADS), NACC provides a valuable resource for both exploratory and explanatory Alzheimer's disease research. NACC data are freely available to all researchers.

NACC is located in the Department of Epidemiology at the University of Washington in Seattle and funded by NIA/NIH cooperative grant U24 AG072122.

The ADRC program

The National Institute on Aging/NIH currently funds 37 ADRCs across the United States. The Centers work to translate research advances into improved diagnosis and care and find ways to treat and possibly prevent Alzheimer's disease and related dementias. Each has its own research focus and recruitment protocol. However, the Centers are all required to involve their entire clinic enrollment in the Uniform Data Set (UDS) study and submit these data to NACC.

The Centers are organized in "cores" (Administrative; Clinical; Data Management & Statistics; Imaging; Neuropathology; Outreach, Recruitment and Engagement; and Biomarker) and "components" (Research Education Component).

For more information on the ADRC Program, please visit the NIA website.

NACC Modernization

NACC relationships with ADRCs, SCAN, NCRAD, ADGC & NIAGADs, NACC and investigators

Help us build a one-stop-shop for all data from the Alzheimer’s Disease Research Centers (ADRC) Program

NACC, NCRAD, and NIAGADS are eager to partner with ADRD researchers and clinicians from across the Alzheimer’s Disease Research Centers (ADRC) Program and beyond to build the “Data Front Door” (DFD), a one-stop-shop for all ADRC data. Our goal is to have this platform integrate and connect all ADRC data streams to NACC IDs and serve as an effective search, visualization, and access interface for this data. NCRAD and NIAGADS data will continue to be housed within the NCRAD and NIAGADS databases but biomarker and genetic metadata for all ADRC participants will be searchable through the DFD.

Our hope is that harmonizing these data streams and connecting them to NACC IDs will enable researchers to investigate and answer new questions in Alzheimer’s disease.

We welcome you to share your input in two ways:

  1. Sign-up to participate in one of our focus groups with thought leaders from across the ADRC program
  2. Take the survey on Data Front Door Requirements

NACC staff

Leadership Team

Walter A. Kukull, PhD
  • Walter A. Kukull, PhD
  • He/Him
  • Principal Investigator/Director
  • Professor, Epidemiology
  • (206) 543-4560, (206) 616-1765
  • kukull@uw.edu
Sarah Biber, PhD
  • Sarah Biber, PhD
  • She/Her
  • Program Director
  • biber@uw.edu

Operations Team

Hannah Rosentreter
  • Hannah Rosentreter
  • She/Her
  • Manager of Special Projects
  • hanrose3@uw.edu
Amy Young
  • Amy Young
  • She/Her
  • Public Information Specialist
  • (206) 708-5528
  • ayoung1@uw.edu
Brittany Hale
  • Brittany Hale
  • She/Her
  • Project Manager
  • halebri@uw.edu
Clair Cassidy
  • Clair Cassidy
  • She/Her
  • Administrative Coordinator
  • clairc4@uw.edu
Theresa Barnhart, CRA
  • Theresa Barnhart, CRA
  • Grants and Finance Team Manager
  • barnhat2@uw.edu
Valerie Hockens
  • Valerie Hockens
  • Program Operations Specialist
  • (206) 616-6264
  • vhockens@uw.edu

Research Team

Kari A. Stephens, PhD
  • Kari A. Stephens, PhD
  • She/Her
  • Associate Director
  • Associate Professor, Director of Clinical Research Informatics, Department of Family Medicine
  • Adjunct Associate Professor, Department of Biomedical Informatics and Medical Education
  • (206) 221-0349
  • kstephen@uw.edu
Charles Mock, MD, PhD, FACS
  • Charles Mock, MD, PhD, FACS
  • He/Him
  • Associate Director and Epidemiologist
  • Professor, Epidemiology
  • Global Health, Surgery
  • (206) 543-6944
  • cmock@uw.edu
Dean K. Shibata, MD
  • Dean K. Shibata, MD
  • He/Him
  • Co-investigator and Radiologist
  • Professor, Radiology
  • (206) 543-8637
  • shibatad@uw.edu
Kwun Chuen Gary Chan, PhD
  • Kwun Chuen Gary Chan, PhD
  • He/Him
  • Associate Director
  • Professor, Biostatistics
  • Professor, Department of Health Systems and Population Health
  • (206) 685-9177
  • kcgchan@uw.edu
Will Longstreth, MD
  • Will Longstreth, MD
  • Co-investigator and Neurologist
  • Professor, Neurology
  • (206) 744-3251
  • wl@uw.edu
Yen-Chi Chen, PhD
  • Yen-Chi Chen, PhD
  • He/Him
  • Co-investigator and Statistician
  • Assistant Professor, Statistics
  • (206) 543-6944
  • yenchic@uw.edu
Melissa Lerch, PhD
  • Melissa Lerch, PhD
  • She/Her
  • Research Team Manager
  • lerchm@uw.edu
Jessica Culhane, MS
  • Jessica Culhane, MS
  • She/Her
  • Research Scientist
  • (206) 616-0254
  • culhane@uw.edu
Kathryn Gauthreaux, MS
  • Kathryn Gauthreaux, MS
  • She/Her
  • Research Scientist
  • (206) 616-5647
  • kgaut@uw.edu
Zack Miller, BS
  • Zack Miller, BS
  • He/Him
  • Research Consultant
  • (206) 616-6263
  • zmiller3@uw.edu
Fan Xia, PhD
  • Fan Xia, PhD
  • Postdoctoral Fellow
  • fanxia@uw.edu

Technology Team

Sean Mooney, PhD
  • Sean Mooney, PhD
  • He/Him
  • Associate Director
  • Chief Research Information Officer, UW Medicine
  • Professor, Department of Biomedical Informatics and Medical Education
  • (206) 685-0249
  • sdmooney@uw.edu
Janene Hubbard, BS
  • Janene Hubbard, BS
  • She/Her
  • Research Consultant
  • Research IT, UW Medicine
  • (206) 668-9582
  • janene@uw.edu
Ben Keller, PhD
  • Ben Keller, PhD
  • He/Him
  • Technology Lead
  • Research IT, UW Medicine
  • (206) 668-9599
  • bjkeller@uw.edu
Zach Stark, BBA
  • Zach Stark, BBA
  • He/Him
  • Software Engineer
  • Research IT, UW Medicine
  • (206) 668-9580
  • zstark@uw.edu
Joylee Wu, MS
  • Joylee Wu, MS
  • She/Her
  • Database Administrator
  • Research IT, UW Medicine
  • (206) 668-9583
  • joyleewu@uw.edu
Laura McLeod
  • Laura McLeod
  • She/Her
  • Senior REDCap Administrator
  • Research IT, UW Medicine
  • (206) 668-9623
  • mcleod42@uw.edu
Chandima HewaNadungodage, PhD
  • Chandima HewaNadungodage, PhD
  • She/Her
  • Software Engineer
  • Research IT, UW Medicine
  • chandhn@uw.edu
Brendan Smith, BS
  • Brendan Smith, BS
  • He/Him
  • Web Developer
  • Research IT, UW Medicine
  • brendan2@uw.edu