Forms and documentation

Uniform Data Set (UDS)

The Neuropathology Data Set is collected using a standardized neuropathological evaluation and contains autopsy data for a subset of both UDS and Minimum Data Set (MDS) participants. Version 11 of the NP data-collection form was implemented in April 2021.

Researcher's Data Dictionary

The Researchers Data Dictionary — NP Data Set is intended to be the first and primary resource for researchers analyzing NACC neuropathology data. It has undergone several revisions since its inception in 2002, the most substantial of which occurred in 2014 with the implementation of version 10 of the Neuropathology Data form. The RDD-NP brings together information from all the original data-collection instruments (Coding Guidebooks and Forms) for all past and current versions of the NP Form.

Essential documents

FormCoding GuidebookDEDData Template
The Neuropathology (NP) form

This form is used to collect a selected set of pathological features at autopsy.

The Brief Data Set (BDS)

This form is used to capture a brief set of clinical data for the purpose of submitting a neuropathology data form. The form is required if a UDS visit was not complete or MDS data was not submitted to NACC prior to autopsy.