The full packet, containing all data collection forms. Alternatively, individual forms can be downloaded below.
The guidebooks provide detailed, annotated explanations of each form on an item-level basis, with instructions, operational definitions, and references.
|Data Element Dictionary|
In a compact format, the DEDs list all the variables and provide a detailed description, including data type, length of field, allowable codes, and information on skip patterns and blanks.
Templates are designed to help ADRC Data Cores develop software for submitting UDS data to NACC via ASCII batch file submission.
|B1L: Clinical Symptoms and Exam|
|B2L: UPDRS Part II — Activities of Daily Living|
|B3L: UPDRS Part III — Motor Examination 1|
|B4L: Neuropsychiatric Inventory (NPI) 1|
|B5L: Mayo Fluctuations Scale|
|B6L: Mayo Sleep Questionnaire — Participant|
|B7L: Mayo Sleep Questionnaire — Co-participant|
|B8L: SCOPA Sleep — Participant|
|B9L: SCOPA Sleep — Co-participant|
|C1L: Neuropsychological Battery Scores|
|D1L: Clinical DLB and PD Features|
|E2L: Neuroimaging Available and FIndings|
|E3L: Other Labs and Findings|