Forms and documentation

Uniform Data Set (UDS)

The FTLD Module was implemented in 2012 and contains data collected on a subset of UDS participants. The Module is aimed at evaluating those suffering from or at risk for any of the forms of frontotemporal lobar degeneration.
Training materials are available for this module.

Essential documents


Initial Visit
(IVP)
Follow-up Visit
(FVP)
Forms Packet, English

The full packet, containing all data collection forms in English. Alternatively, individual forms can be downloaded below.

  
Forms Packet, Spanish

The full packet, containing all data collection forms in Spanish. Alternatively, individual forms can be downloaded below.

  
Coding Guidebook

The guidebooks provide detailed, annotated explanations of each form on an item-level basis, with instructions, operational definitions, and references.

  
Data Element Dictionary

In a compact format, the DEDs list all the variables and provide a detailed description, including data type, length of field, allowable codes, and information on skip patterns and blanks.

  
Data Template

Templates are designed to help ADRC Data Cores develop software for submitting UDS data to NACC via ASCII batch file submission.

  

Individual forms

Initial Visit
(IVP)
Follow-up Visit
(FVP)

If you’re unable to find what you’re looking for, please don’t hesitate to contact us.

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University of Washington

NACC is funded by the National Institute on Aging (U01 AG016976) and located in the Department of Epidemiology at the University of Washington School of Public Health, Walter A. Kukull, Ph.D., Director. © 2021 University of Washington