ADRC webinars

Imaging Core

ADRC webinars

Robert Koeppe, Charles DeCarli, Tim Hohman, Paul Yushkevich, Kejal Kantarci
November 6, 2020

  • Introductions
  • Topics in PET standardization and analysis
    — Robert Koeppe, PhD, MS Professor of Radiology, University of Michigan
  • Leveraging MRI, results of NACC legacy analyses
    — Charles DeCarli, MD Director, University of California, Davis
  • Common variants in RBFOX1 are associated with brain amyloidosis
    — Tim Hohman, PhD Associate professor, Vanderbilt
  • Ex Vivo MRI and its applications
    — Paul Yushkevich, PhD, MS Professor of Radiology, University of Pennsylvania
  • A/T classification of DLB
    — Kejal Kantarci, MD, Professor of Radiology, Mayo
Watch the video

NIA Alzheimer's Translational Research Program

ADRC webinars

Bidirectional knowledge and resource sharing between ATRP and the ADRCs

Suzana Petanceska, Shreaya Chakroborty, Stacey Rizzo, Paul Territo, Carl LaFlamme, Peter McPherson
October 26, 2020

Watch the video

Clinical Core

ADRC webinars

Measuring Vascular Contributions to Cognitive Impairment and Dementia (VCID)

Cindy Carlsson, Angela Jefferson, Donna Wilcock, Konstantinos Arfanakis, Charlie DeCarli
November 20, 2020

  • Introduction
    — Cindy Carlsson, MD, MS; University of Wisconsin ADRC
  • Assessing Cardiovascular Integrity from the Heart to the Brain
    — Angela Jefferson, PhD, Vanderbilt University Exploratory (P20) ADRC
  • The Potential of Fluid Biomarkers for Clinical Assessment and Trials in VCID
    — Donna Wilcock, PhD, University of Kentucky ADRC, MarkVCID
  • Neuroimaging Biomarkers of VCID
    — Konstantinos Arfanakis, PhD, Rush University ADRC, MarkVCID
  • Overview of Diverse VCID: White Matter Lesion Etiology of Dementia in Diverse Populations
    — Charlie DeCarli, M, UC Davis ADRC, MarkVCID
Watch the video
ADRC webinars

Researching New Models of Dementia Care

Jeff Burns, Katherine Possin, Jeff Williamson, James Lah, Mary Mittelman
September 25, 2020

Presentations include "The Care Ecosystem: Results from the Randomized Clinical Trial and Implementation Projects" with Katherine L. Possin, PhD, UCSF; "Expanding statewide access to expert care – the Georgia Memory Net" with James Lah, MD, Emory University; "The Dementia Care (D-CARE) Study: A PCORI + NIA trial to provide evidence-based approaches for supporting caregivers for persons with dementia" with Jeff Williamson, MD, Wake Forest University; and "A comprehensive dementia caregiver program based on rigorous research" with Mary Mittelman, DrPH, New York University.

Watch the video
ADRC webinars

Social Determinants of Health

Lisa Barnes, Amy Kind, and data blitz presenters
June 26, 2020

Presentations include "Social Determinants and Cognitive Aging" with Lisa Barnes, PhD, Rush University; and "The Power of Context: Considering Multi-Level Social Determinants in Brain Health" with Amy Kind, MD, PhD, University of Wisconsin. A data blitz follows, featuring Jaime Perales, PhD, University of Kansas, speaking on "Ethnoracial Disparities in Mild Cognitive Impairment"; Stephen F. Smagula, PhD, University of Pittsburgh, on "Sleep-wake Correlates of Depression Symptoms, and their Neurobiological Basis, in Dementia Caregivers"; and Megan Zuelsdorff, PhD, University of Wisconsin, on "Social-biological dimensions of ADRD risk, resilience, and disparity: the Stress and Resilience in Dementia (STRIDE) study."

Watch the video

ORE Core

ADRC webinars

What Makes a Strong ORE Core? Strategy and Advice from the Experts

Allison Lindauer, Dorothy Farrar Edwards, Cerise Elliott, Jason Karlawish, Jennifer Lingler
October 23, 2020

Watch the video
ADRC webinars

ORE Core during COVID-19

Dorene Rentz, Joshua Grill, Crystal Glover, Yakeel Quiroz
September 3, 2020

Presentations include "Keeping Participants Engaged" with Josh Grill, PhD, UC Irvine; "Novel Virtual and Next-level Engagement" with Crystal Glover, PhD, Rush University; and "Scientific Needs, Risks, and Opportunities," with Yakeel Quiroz, PhD, Massachusetts ADRC.

Watch the video

Data Core

Alice SpalittaArseny Semin

Implementing Electronic Data Capture for a Decentralized Visit Model

Alice Spalitta, Arseny Semin, University of Wisconsin ADRC
Presented June 4, 2020

The Wisconsin Alzheimer’s Disease Research Center recently completed the transition from paper forms to a hybrid data entry system. Our center has been capturing data in REDCap since the inception of Universal Data Set (UDS) 3, but due to software limitations and the fact that our visit workflow requires the participant to move to different rooms during the visit, we have not been able to enter the data directly into REDCap until this year. Implementation of the new workflow has allowed us to cut data entry times in half, improve our NACC time to finalization, and save up to 75 pieces of paper per study visit. In this webinar we will cover our process for transitioning to a hybrid electronic-paper system, advantages of the REDCap query resolution module, using validation and data quality rules, and leveraging R or Python to parse through the NACC error report and to identify new and/or modified packets to upload to NACC.

Watch the video
Nicolas May

"Tidy Eval" in R for munging UDS data

Nicolas May, University of Michigan ADRC
Presented July 31, 2019

Metaprogramming [en.wikipedia.org] can be a useful tool for data munging because so much data manipulation code for wide datasets (such as UDS) with iterating field names can be more efficiently and effectively written by code than by hand. For example, manipulating UDS v3 fields like 'sib1yob' through 'sib20yob' with code written by hand takes a lot of typing and may result in quiet errors because of field name typos. Tidy evaluation (or "tidy eval") is a conceptual framework that follows tidyverse [tidyverse.org] principles to make metaprogramming in R more consistent and accessible. In this webinar we will explore how tidy eval can make complex or code-verbose data munging tasks more simple and reliable.

Watch the video
Kevin Hanson

NACCulator: A collaboration to facilitate data transfer

Kevin Hanson, 1Florida ADRC
Presented August 14, 2019

This webinar will discuss the open-source tool called NACCulator, and how the 1Florida ADRC and University of Michigan ADRC have collaborated to develop this tool over time. NACCulator is a Python-based program that formats output from REDCap to share data with the NACC data system. It incorporates data validation checks from the NACC UDS 3.0 data element dictionary and can be scripted to run automatically.

Watch the video
Sudeshna Das

Transitioning to electronic data capture at the Massachusetts ADRC

Sudeshna Das, Massachusetts ADRC
Presented September 24, 2019

The Massachusetts Alzheimer’s Disease Research Center (MADRC) recently began a transition to a REDCap-based electronic data capture (EDC) system for the National Alzheimer's Coordinating Center (NACC) Uniform Data Set (UDS) version 3 as well as the Neuropathology Data Set and the FTLD (Frontotemporal Lobar Degeneration) and LBD (Lewy Body Dementia) Modules. MADRC has so far been using paper forms for data capture and entering the data into NACC directly. In this webinar, we will discuss our experiences, lessons learned, and how we leveraged reusable resources developed by other ADRCs. We will present the workflows designed and implemented, and the advantages of using an EDC system. We hope that our experiences will inform other ADRCs that are planning to use REDCap-based EDC. We will also briefly touch on how we have integrated data from all the MADRC cores and developed a linkage database for query and visualization of these multi-modal data.

Watch the video

If you’re unable to find what you’re looking for, please don’t hesitate to contact us.

4311 – 11th Avenue NE, Suite 300, Seattle, WA 98105 |(206) 543-8637 | NACCmail@uw.edu

University of Washington

NACC is funded by the National Institute on Aging (U01 AG016976) and located in the Department of Epidemiology at the University of Washington School of Public Health, Walter A. Kukull, Ph.D., Director. © 2021 University of Washington