Submit data request

Before submitting a request, you are urged to familiarize yourself with the UDS study population and bear its limitations in mind when you formulate your research question and interpret your data.


There are two ways to request NACC data for research:

  • The custom data request – Your data set is available for download within a week after you finalize your criteria. This method requires a few more days on the front end but saves a great amount of time on the back end. In this method, you complete a data request, working with NACC to precisely specify your data set. NACC research scientists are familiar with the variables and experienced in working with the nuances and complications of the data sets. They can help you understand your data file and ensure that you have the appropriate data to address your research question.
  • The quick-access full data file – Your data set is available for download normally within a day of your request. With this request, you receive the complete UDS, Neuropathology, and APOE/genetic data sets from the latest quarterly data archive. Using this approach, you receive your data set more quickly (shortly after submitting your request and accepting the NACC data use agreement), but it will likely require more effort from you afterward in understanding the data elements.

To submit a data request, please provide the information requested below, and then click submit. You will be contacted by a NACC staff member within three business days. At that point, you will be asked to confirm your request and sign the NACC data use agreement. Note that investigator name, institution, email address, title, abstract, and key words will be displayed in the list of Ongoing and Completed Projects on the NACC website.

NACC cannot ensure that each data request and resulting data set are novel to the NACC database. It is the responsibility of the researcher, not NACC, to identify a unique research hypothesis and ensure that there is no significant overlap with other ongoing or published NACC data analyses.

NACC data request form

Contact information


New request form


State concisely the goals of the proposed research and summarize the expected outcome(s), including the impact that the results of the proposed research will exert on the research field(s) involved.

List succinctly the specific objectives of the research proposed, e.g., to test a stated hypothesis, create a novel design, solve a specific problem, challenge an existing paradigm or clinical practice, address a critical barrier to progress in the field, or develop new technology. (BE SPECIFIC.)

These aims will be posted for public access in the section of this website titled "Ongoing and Completed Research Using NACC Data."

Preferences
Data set(s) requested:
Preferred file format:
Would you like to talk to a NACC staff member about statistical methods or assistance with data analysis?

NOTE: This form of consultation is provided on a time-available basis.

You may submit an optional file (.csv, .pdf, .doc(x), or .xls(x)) containing additional information or specifications for your data request.

If you’re unable to find what you’re looking for, please don’t hesitate to contact us.

4311 – 11th Avenue NE, Suite 300, Seattle, WA 98105 |(206) 543-8637 | NACCmail@uw.edu

University of Washington

NACC is funded by the National Institute on Aging (U01 AG016976) and located in the Department of Epidemiology at the University of Washington School of Public Health, Walter A. Kukull, Ph.D., Director. © 2021 University of Washington