2022 Fall ADRC Meeting
Meeting Recordings and Presentation Slides Are Now Available
You can also enjoy a quick scroll through attendee submitted photos!
Fall ADRC Meeting Highlights
The Fall 2022 ADRC Meeting was held in a Hybrid format, online and in-person in Chicago, Il. Links to slides and video recordings are below.
Location: Swissotel, Chicago Illinois
In Attendance:
- In-person: 277
- Virtual: 657
Meeting Theme: Diversity Equity and Inclusion
The Fall ADRC Meeting centered on the importance of Diversity, Equity, and Inclusion (DEI) in ADRC research and operations, which was intended to set the stage for increased efforts network-wide to ensure equitable practices and increased representation of the communities we serve. This is a stated priority of the NIA and of our Center members.
The DEI focus of the 2022 Fall ADRC Meeting:
- Understanding the scientific underpinnings of potential racial and ethnic differences in the pathobiology and clinical phenotye of ADRD
- Examining and addressing why some minoritized populations are disproportionately underdiagnosed and affected by ADRD
- Assessing the possible relationship between lifelong social exposures and risk and resilience to ADRD
- Diversifying the ADRC participant pool
- Cultivating a diverse ADRC workforce
View the Full Meeting agenda
View the Data Core Workshop agenda
Directors Session
View the Full Session on Youtube:
View and Download Slide Presentations:
- Diversity, Equity, and Inclusion Research across the ADRD Continuum: A Call to Action for the ADRC Network
- Sanjay Asthana, MD Wisconsin ADRC
- Social Determinants of Health and Health Equity
- Lisa Barnes, PhD Rush University Alzheimer's Disease Center
- Genetics of Alzheimer's Disease in Minoritized Populations
- Margaret Pericak-Vance, PhD John P. Hussman Institute for Human Genomics
- Diversity, Equity, and Inclusion Research across the ADRD Continuum: A Call to Action for the ADRC Network
- Sanjay Asthana, MD Wisconsin ADRC
- Social Determinants of Health and Health Equity
- Lisa Barnes, PhD Rush University Alzheimer's Disease Center
- Genetics of Alzheimer's Disease in Minoritized Populations
- Margaret Pericak-Vance, PhD John P. Hussman Institute for Human Genomics
NACC Session
View the Full Session on Youtube:
View and Download Slide Presentations:
- Building a Novel Platform to Expand Longitudinal COVID-19 Data Collection, Integrate New Data Streams, and Open the Door to Impactful New COVID-19 and ADRD Discoveries
- Kari Stephens, PhD, Sean Mooney, PhD, Melissa Lerch, PhD NACC
- Building a Novel Platform to Expand Longitudinal COVID-19 Data Collection, Integrate New Data Streams, and Open the Door to Impactful New COVID-19 and ADRD Discoveries
- Kari Stephens, PhD, Sean Mooney, PhD, Melissa Lerch, PhD NACC
Data Core Session
View the Full Session on Youtube:
View and Download Slide Presentations:
- Developing Digital Assessments for Down Syndrome-Associated AD
- Jason Hassenstab, PhD Washington University Knight ADRC
- Taking Digital Measures from Validation to Scaling to Researcher Tools Collecting Data on 500k Participants
- Larsson Omberg, PhD Sage Bionetworks
- Opportunities and Challenges in Using Digital Biomarkers as Trial Outcomes
- Hiroko Dodge, PhD Oregon Health and Science University ADRC
- The Number of Coordinated Phrases: A Potential Linguistic Marker to Track Changes of Language Ability in RCTs
- Meysam Asgari, PhD Oregon Health and Science University ADRC
- Feasibility of Repeated Remote Memory Assessment with Mobile Devices to Detect Subtle Cognitive Decline in Older Adults
- Lindsay Clark, PhD Wisconsin ADRC
- Machine Learning Approaches on Audio Recordings for Dementia Assessment
- Vijaya Kolachalama, PhD Boston University ADRC
- Impact of the COVID-19 Pandemic on Enrollment at United States Alzheimer's Disease Research Centers
- C. Elizabeth Shaaban, PhD, MS, MPH University of Pittsburgh ADRC
- CDR Domain Scoring Variation by Race in the NACC Dataset
- Giovanna Pilonieta, PhD, DDS, MPH UAB Exploratory ADRC
- Developing Digital Assessments for Down Syndrome-Associated AD
- Jason Hassenstab, PhD Washington University Knight ADRC
- Taking Digital Measures from Validation to Scaling to Researcher Tools Collecting Data on 500k Participants
- Larsson Omberg, PhD Sage Bionetworks
- Opportunities and Challenges in Using Digital Biomarkers as Trial Outcomes
- Hiroko Dodge, PhD Oregon Health and Science University ADRC
- The Number of Coordinated Phrases: A Potential Linguistic Marker to Track Changes of Language Ability in RCTs
- Meysam Asgari, PhD Oregon Health and Science University ADRC
- Feasibility of Repeated Remote Memory Assessment with Mobile Devices to Detect Subtle Cognitive Decline in Older Adults
- Lindsay Clark, PhD Wisconsin ADRC
- Machine Learning Approaches on Audio Recordings for Dementia Assessment
- Vijaya Kolachalama, PhD Boston University ADRC
- Impact of the COVID-19 Pandemic on Enrollment at United States Alzheimer's Disease Research Centers
- C. Elizabeth Shaaban, PhD, MS, MPH University of Pittsburgh ADRC
- CDR Domain Scoring Variation by Race in the NACC Dataset
- Giovanna Pilonieta, PhD, DDS, MPH UAB Exploratory ADRC
Clinical Task Force (CTF) Session
View the Full Session on Youtube:
View and Download Slide Presentations:
- SCD Update
- Lisa Barnes, PhD & Andrew Saykin, PsyD Rush University Alzheimer's Disease Center & Indiana University ADRC
- Closing Remarks
- Allan Levey, MD, PhD Emory University, Goizueta ADRC
- SCD Update
- Lisa Barnes, PhD & Andrew Saykin, PsyD Rush University Alzheimer's Disease Center & Indiana University ADRC
- Closing Remarks
- Allan Levey, MD, PhD Emory University, Goizueta ADRC
Outreach Recruitment and Engagement (ORE) Core Session
View the Full Session on Youtube:
View and Download Slide Presentations:
- Building Strong, Bi-directional, and Sustainable Community Partnerships to Support Recruitment for AD Trials
- Gina Green-Harris, MBA Wisconsin ADRC
- Ethical Considerations Associated with Financial Compensation of Participants and Study Partners
- Emily Largent, PhD, JD, RN Penn ADRC / Penn Memory Center
- Building Deep Relationships to Support Recruitment: Meaningful Engagement of the Faith Community
- Rev. Howard Jenkins Bethel African Methodist Episcopal Church
- Building Strong, Bi-directional, and Sustainable Community Partnerships to Support Recruitment for AD Trials
- Gina Green-Harris, MBA Wisconsin ADRC
- Ethical Considerations Associated with Financial Compensation of Participants and Study Partners
- Emily Largent, PhD, JD, RN Penn ADRC / Penn Memory Center
- Building Deep Relationships to Support Recruitment: Meaningful Engagement of the Faith Community
- Rev. Howard Jenkins Bethel African Methodist Episcopal Church
Neuropathology Core Session
View the Full Session on Youtube:
View and Download Slide Presentations:
- Microglial Heterogeneity in Cognitively Resilient Individuals from the Mayo Clinic Study of Aging
- Aivi Nguyen, MD Mayo Clinic ADRC
- Somatic Mutation Profiling and Pathogenesis in Alzheimer's Disease by Single-Neuron Genome Sequencing
- Michael Miller, MD, PhD Brigham and Women's Hospital
- Proteomic Studies on the Phosphorylated Tau Interactome in the Human Brain of Alzheimer's Disease
- Arline Faustin, MD NYU ADRC
- Computer Vision & Machine Learning in Digital Neuropathology
- Kurt Farrell, PhD Mount Sinai School of Medicine ADRC
- Narratives and Storytelling in DEI: The Diversify In Path Podcast experience
- Michael Williams, MD UAB Exploratory ADRC
- The Neighborhoods Study: Linking the Disparities-Aligned Exposome to Brain Tissue
- Amy Kind, MD, PhD Wisconsin ADRC
- Microglial Heterogeneity in Cognitively Resilient Individuals from the Mayo Clinic Study of Aging
- Aivi Nguyen, MD Mayo Clinic ADRC
- Somatic Mutation Profiling and Pathogenesis in Alzheimer's Disease by Single-Neuron Genome Sequencing
- Michael Miller, MD, PhD Brigham and Women's Hospital
- Proteomic Studies on the Phosphorylated Tau Interactome in the Human Brain of Alzheimer's Disease
- Arline Faustin, MD NYU ADRC
- Computer Vision & Machine Learning in Digital Neuropathology
- Kurt Farrell, PhD Mount Sinai School of Medicine ADRC
- Narratives and Storytelling in DEI: The Diversify In Path Podcast experience
- Michael Williams, MD UAB Exploratory ADRC
- The Neighborhoods Study: Linking the Disparities-Aligned Exposome to Brain Tissue
- Amy Kind, MD, PhD Wisconsin ADRC
Cross Core Collaborative Session 1: Research Translation for All Persons: A Discussion of the ADRC Network Role
View the Full Session on Youtube:
View and Download Slide Presentations:
- A Personal Perspective: The Importance of Equal Access to Care and Intervention in AD
- Maria Carrillo, PhD Alzheimer's Association
- Equity-Focused Interventions and Research Engagement in Underserved Populations
- Rachel Whitmer, PhD UC Davis ADRC
- A Personal Perspective: The Importance of Equal Access to Care and Intervention in AD
- Maria Carrillo, PhD Alzheimer's Association
- Equity-Focused Interventions and Research Engagement in Underserved Populations
- Rachel Whitmer, PhD UC Davis ADRC
Cross Core Collaborative Session 2: The Diversification of Brain Tissue: Why and Ways Forward
View the Full Session on Youtube:
View and Download Slide Presentations:
- Facilitating Equitable Scientific Advancements in ADRD: Examining Brain Pathology from Demographically Diverse Decedents
- Julie A. Schneider, MD, MS Rush University Alzheimer's Disease Center
- Amplifying Facilitators and Addressing Barriers: The Development and Implementation of Strategies to Increase Brain Donation Among Demographically Diverse Older Adults
- Crystal M. Glover, PhD Rush University Alzheimer's Disease Center
- Facilitating Equitable Scientific Advancements in ADRD: Examining Brain Pathology from Demographically Diverse Decedents
- Julie A. Schneider, MD, MS Rush University Alzheimer's Disease Center
- Amplifying Facilitators and Addressing Barriers: The Development and Implementation of Strategies to Increase Brain Donation Among Demographically Diverse Older Adults
- Crystal M. Glover, PhD Rush University Alzheimer's Disease Center
Data Core Pre-Meeting Workshop
View the Full Session on Youtube:
View and Download Slide Presentations:
- Evaluation of machine learning-readiness in Alzheimer's disease data cohorts
- Vijaya Kolachalama, PhD, FAHA Boston University ADRC
- Application of item response theory to the study of mixed neuropathologies in the aging brain
- Yuriko Katsumata, PhD University of Kentucky ADRC
- Demographic Adjustment Is Not Demographic Correction: A Simulation Study
- Jacob Fiala, MA 1Florida ADRC
- Measuring Alignment Between the ADRC UDS Data Elements, FDA, and EHR Data Standards
- Meredith Zozus, PhD South Texas ADRC
- Bayesian random change point mixed model for longitudinal data: an application to the study of cognitive performance trajectories in Wisconsin Registry for Alzheimer's Prevention
- Lianlian Du, MS Wisconsin ADRC
- Statistical Methods For Assessing Health Disparity in Longitudinal ADRD Research
- Chen-Pin Wang, PhD South Texas ADRC
- 3D brain modeling and the prospect of virtual reality Neuropathology Cores
- Kevin Bieniek, PhD South Texas ADRC
- Requirements Update
- Chard Murchison, PhD, and Sarah Gothard, PhD UAB Exploratory ADRC, and Oregon Health and Science University ADRC
- Evaluation of machine learning-readiness in Alzheimer's disease data cohorts
- Vijaya Kolachalama, PhD, FAHA Boston University ADRC
- Application of item response theory to the study of mixed neuropathologies in the aging brain
- Yuriko Katsumata, PhD University of Kentucky ADRC
- Demographic Adjustment Is Not Demographic Correction: A Simulation Study
- Jacob Fiala, MA 1Florida ADRC
- Measuring Alignment Between the ADRC UDS Data Elements, FDA, and EHR Data Standards
- Meredith Zozus, PhD South Texas ADRC
- Bayesian random change point mixed model for longitudinal data: an application to the study of cognitive performance trajectories in Wisconsin Registry for Alzheimer's Prevention
- Lianlian Du, MS Wisconsin ADRC
- Statistical Methods For Assessing Health Disparity in Longitudinal ADRD Research
- Chen-Pin Wang, PhD South Texas ADRC
- 3D brain modeling and the prospect of virtual reality Neuropathology Cores
- Kevin Bieniek, PhD South Texas ADRC
- Requirements Update
- Chard Murchison, PhD, and Sarah Gothard, PhD UAB Exploratory ADRC, and Oregon Health and Science University ADRC