Forms and documentation

Uniform Data Set (UDS)

The DS Module was implemented in 2020 and was designed to be used with a subset of UDS participants; specifically, adults with Down syndrome. Due to trisomy 21, adults with Down syndrome have an increased risk for and early onset of Alzheimer's disease.
Training materials are available for this module.

Essential documents


Initial Visit
(IVP)
Follow-up Visit
(FVP)
Forms Packet

The full packet, containing all data collection forms. Alternatively, individual forms can be downloaded below.

 

In development

Coding Guidebook

The guidebooks provide detailed, annotated explanations of each form on an item-level basis, with instructions, operational definitions, and references.

 

In development

Data Element Dictionary

In a compact format, the DEDs list all the variables and provide a detailed description, including data type, length of field, allowable codes, and information on skip patterns and blanks.

In development

In development

Data Template

Templates are designed to help ADRC Data Cores develop software for submitting UDS data to NACC via ASCII batch file submission.

In development

In development

Individual forms

Initial Visit
(IVP)
Follow-up Visit
(FVP)
A1D: Participant Health History 

In development

B1D: NTG — Early Detection Screen for Dementia 

In development

B2D: DLD Summary Page 

In development

C1D: Neuropsychological Battery Scores 

In development

D1D: Clinician Exam and Diagnosis 

In development

If you’re unable to find what you’re looking for, please don’t hesitate to contact us.

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University of Washington

NACC is funded by the National Institute on Aging (U01 AG016976) and located in the Department of Epidemiology at the University of Washington School of Public Health, Walter A. Kukull, Ph.D., Director. © 2021 University of Washington