2024 Fall ADRC Meeting
The Fall 2024 ADRC Meeting was held in a Hybrid format, online and in-person in Boston, MA. Links to slides and video recordings are below.
Data Core Workshop
View and Download Slide Presentations:
- Introduction
- Iris Leng, MD, PhD
- Unbiased and Robust Analysis of Co-Localization in Alzheimer's Disease Research Images
- Hui Zhang, PhD, MA, MS
- Applications of Joint Models for Assessing Attrition Bias When Studying Cognitive Trajectories
- Rachel Stuckwisch, MPH, MS
- Bayesian Multi-modality Disease-progression Models of Dementia
- John Kornak, PhD
- Development and Validation of Natural Language Processing (NLP)-Based Risk Prediction Model for Cognitive Impairment in Geriatric Patients
- Laili Soleimani, MD
- What EDCS Workgroup Has Accomplished
- Sarah Biber, PhD
- UDSv4 and NACCID Pilot Report Outs
- Jess Welsch, MBA
- Crosswalk and Harmonization
- Chad Murchison, PhD
- Introduction
- Iris Leng, MD, PhD
- Unbiased and Robust Analysis of Co-Localization in Alzheimer's Disease Research Images
- Hui Zhang, PhD, MA, MS
- Applications of Joint Models for Assessing Attrition Bias When Studying Cognitive Trajectories
- Rachel Stuckwisch, MPH, MS
- Bayesian Multi-modality Disease-progression Models of Dementia
- John Kornak, PhD
- Development and Validation of Natural Language Processing (NLP)-Based Risk Prediction Model for Cognitive Impairment in Geriatric Patients
- Laili Soleimani, MD
- What EDCS Workgroup Has Accomplished
- Sarah Biber, PhD
- UDSv4 and NACCID Pilot Report Outs
- Jess Welsch, MBA
- Crosswalk and Harmonization
- Chad Murchison, PhD
ORE Core
View and Download Slide Presentations:
- Introduction & Committee Updates
- Dorothy Farrar-Edwards, PhD
- Retention Pathway - Addressing Challenges-Longitudinal Study Participation
- Darby Morhardt, PhD
- Strategies for Retaining Diverse Participants: Building Relationships at the Individual, Family, and Community Level
- Annaise Rahman-Filipiak, PhD
- Community Perspectives on Effective Partnerships
- Rev. Dr. Alex Gee
- Panel Discussion
- Darby Morhardt, PhD
- Panel Discussion
- Rev. Dr. Alex Gee
- Panel Discussion
- Annaise Rahman-Filipiak, PhD
- Panel Discussion
- Monica W. Parker, MD
- Introduction & Committee Updates
- Dorothy Farrar-Edwards, PhD
- Retention Pathway - Addressing Challenges-Longitudinal Study Participation
- Darby Morhardt, PhD
- Strategies for Retaining Diverse Participants: Building Relationships at the Individual, Family, and Community Level
- Annaise Rahman-Filipiak, PhD
- Community Perspectives on Effective Partnerships
- Rev. Dr. Alex Gee
- Panel Discussion
- Darby Morhardt, PhD
- Panel Discussion
- Rev. Dr. Alex Gee
- Panel Discussion
- Annaise Rahman-Filipiak, PhD
- Panel Discussion
- Monica W. Parker, MD
Special Session on Brain Donation
View and Download Slide Presentations:
- Introduction & Committee Updates
- Brittany Dugger, PhD
- Brain Donation
- Crystal M. Glover, PhD
- Panel Discussion
- Crystal M. Glover, PhD, Nancy Cherico, PhD, Tish Hevel, Katie Brandt, MM, Arline Faustin, MD, Darby Morhardt, PhD
- Introduction & Committee Updates
- Brittany Dugger, PhD
- Brain Donation
- Crystal M. Glover, PhD
- Panel Discussion
- Crystal M. Glover, PhD, Nancy Cherico, PhD, Tish Hevel, Katie Brandt, MM, Arline Faustin, MD, Darby Morhardt, PhD
Neuropathology Core
View and Download Slide Presentations:
- What's Happening in the ADRC Neuropathology Core
- Brittany Dugger, PhD
- Brain Donation Survey Results
- Alifiya Kapasi, PhD
- Culture-Centric Narrative as a Tool for Messaging about Brain Donation
- Jennifer Lingler, PhD, RN
- Enrollment into Brain Donation in a Diverse Cohort of Oldest Old - Lessons Learned from the Life After 90 Study
- Rachel Whitmer, PhD
- What's Happening in the ADRC Neuropathology Core
- Brittany Dugger, PhD
- Brain Donation Survey Results
- Alifiya Kapasi, PhD
- Culture-Centric Narrative as a Tool for Messaging about Brain Donation
- Jennifer Lingler, PhD, RN
- Enrollment into Brain Donation in a Diverse Cohort of Oldest Old - Lessons Learned from the Life After 90 Study
- Rachel Whitmer, PhD
New Investigator Award Program Luncheon
View and Download Slide Presentations:
- Welcome to 2025 New Investigator Award Program (NIAP)
- Heather Snyder, PhD
- REC Mentorship Program Overview
- José E. Cavazos, MD, PhD
- Introducing our Speakers: NIAP Awardees
- Sarah Biber, PhD
- Application Strategies for NIAP
- Yuriko Katsumata, PhD
- NACC New Investigator Support: From Genotype to Genetic Program
- Corey McMillan, PhD
- Welcome to 2025 New Investigator Award Program (NIAP)
- Heather Snyder, PhD
- REC Mentorship Program Overview
- José E. Cavazos, MD, PhD
- Introducing our Speakers: NIAP Awardees
- Sarah Biber, PhD
- Application Strategies for NIAP
- Yuriko Katsumata, PhD
- NACC New Investigator Support: From Genotype to Genetic Program
- Corey McMillan, PhD
Directors Session Part 1
View and Download Slide Presentations:
- Introduction
- Sanjay Asthana, MD
- NIA Update
- Richard Hodes, MD
- Division of Neuroscience Update
- Amy Kelley, MD, MSHS
- ADRC Program Update
- Cerise Elliott, PhD
- NACC Update
- Sarah Biber, PhD
- NCRAD Update
- Tatiana Foroud, PhD
- NIAGADS Update
- Li-San Wang, PhD
- Introduction
- Sanjay Asthana, MD
- NIA Update
- Richard Hodes, MD
- Division of Neuroscience Update
- Amy Kelley, MD, MSHS
- ADRC Program Update
- Cerise Elliott, PhD
- NACC Update
- Sarah Biber, PhD
- NCRAD Update
- Tatiana Foroud, PhD
- NIAGADS Update
- Li-San Wang, PhD
Directors Session Part 2
View and Download Slide Presentations:
- Introduction
- Sanjay Asthana, MD
- Pathology Validation of AD Biomarkers vs Neuropathology
- Renaud La Joie, PhD
- Significance of Diversifying ADRC Cohorts
- Rosie Curiel Cid, PsyD
- Advances in biomarkers of Alpha-Synuclein
- Kathleen Poston, MD, MS
- Panel: Understanding Mixed Pathologies, Translation-Clinical Practice
- Gil Rabinovici, MD, Renaud La Joie, PhD, Rosie Curiel Cid, PsyD, Kathleen Poston, MD, MS, Ganesh Babulal, OTD, PhD, Astrid Suchy-Dicey, PhD, Edward Lee, MD, PhD
- Introduction
- Sanjay Asthana, MD
- Pathology Validation of AD Biomarkers vs Neuropathology
- Renaud La Joie, PhD
- Significance of Diversifying ADRC Cohorts
- Rosie Curiel Cid, PsyD
- Advances in biomarkers of Alpha-Synuclein
- Kathleen Poston, MD, MS
- Panel: Understanding Mixed Pathologies, Translation-Clinical Practice
- Gil Rabinovici, MD, Renaud La Joie, PhD, Rosie Curiel Cid, PsyD, Kathleen Poston, MD, MS, Ganesh Babulal, OTD, PhD, Astrid Suchy-Dicey, PhD, Edward Lee, MD, PhD
NACC Session
View and Download Slide Presentations:
- Welcome
- Walter Kukull, PhD
- Timeline & Approach
- Sarah Biber, PhD
- General Resources
- Jess Welsch, MBA
- Clinical Resources
- Cindy Carlsson, MD
- EDC System Resources
- Sudeshna Das, PhD
- What's New and Where Are We Headed?
- Sarah Biber, PhD
- Launching the New NACCID System
- Sarah Biber, PhD
- NACC Data Front Door: A One-Stop-Shop for ADRC Program Data
- Sarah Biber, PhD
- Capturing ATN across the ADRC Program
- Gil Rabinovici, MD
- UDSv4 dVoice and Q&A
- Rhoda Au, PhD
- SCAN Update and Q&A
- Bill Jagust, MD
- Welcome
- Walter Kukull, PhD
- Timeline & Approach
- Sarah Biber, PhD
- General Resources
- Jess Welsch, MBA
- Clinical Resources
- Cindy Carlsson, MD
- EDC System Resources
- Sudeshna Das, PhD
- What's New and Where Are We Headed?
- Sarah Biber, PhD
- Launching the New NACCID System
- Sarah Biber, PhD
- NACC Data Front Door: A One-Stop-Shop for ADRC Program Data
- Sarah Biber, PhD
- Capturing ATN across the ADRC Program
- Gil Rabinovici, MD
- UDSv4 dVoice and Q&A
- Rhoda Au, PhD
- SCAN Update and Q&A
- Bill Jagust, MD
Data Core Session
View and Download Slide Presentations:
- NIAGADS Update - Engaging ADRC Researchers and Understanding Genetic Data Analysis Needs
- Li-San Wang, PhD
- Data Concierge: Making Center Data Findable and Available-the ADRD Research Ecosystem
- Michael Lutz, PhD
- Novel Approaches-Sharing Data and Specimens in Alzheimer's Disease Clinical Trials
- Gustavo Jimenez-Maggiora, PhD, MBA
- Data Support Drives Outreach Recruitment and Engagement Success
- Tina Lewandowski, EdD, Jeffery M. Burns, MD
- Leveraging Real-time Data Platforms-Advance Data-Driven Recruitment
- Kelsie Full, PhD, MPH
- NIAGADS Update - Engaging ADRC Researchers and Understanding Genetic Data Analysis Needs
- Li-San Wang, PhD
- Data Concierge: Making Center Data Findable and Available-the ADRD Research Ecosystem
- Michael Lutz, PhD
- Novel Approaches-Sharing Data and Specimens in Alzheimer's Disease Clinical Trials
- Gustavo Jimenez-Maggiora, PhD, MBA
- Data Support Drives Outreach Recruitment and Engagement Success
- Tina Lewandowski, EdD, Jeffery M. Burns, MD
- Leveraging Real-time Data Platforms-Advance Data-Driven Recruitment
- Kelsie Full, PhD, MPH
CTF Session
View and Download Slide Presentations:
- UDSv4 Pilot Survey Results & Timeline
- Jessica Culhane, MS
- UDSv4 Pilot Panel
- Suzanne Schindler, MD, PhD, Justin Barber, MS, Anna Campbell Sullivan, PsyD, Nicole Oliveira, Eric Steinberg, NP
- UDSv4 Neuropsych Battery Updates
- Andrew Saykin, PsyD, Lisa Barnes, PhD
- CTF Technology Workgroup Updates
- Sudeshna Das, PhD, Sarah Biber, PhD
- UDSv4 Pilot Survey Results & Timeline
- Jessica Culhane, MS
- UDSv4 Pilot Panel
- Suzanne Schindler, MD, PhD, Justin Barber, MS, Anna Campbell Sullivan, PsyD, Nicole Oliveira, Eric Steinberg, NP
- UDSv4 Neuropsych Battery Updates
- Andrew Saykin, PsyD, Lisa Barnes, PhD
- CTF Technology Workgroup Updates
- Sudeshna Das, PhD, Sarah Biber, PhD
CLARiTI Session
View and Download Slide Presentations:
- Scientific Impact of CLARiTI
- Elizabeth Mormino, PhD, Sterling Johnson, PhD
- Infrastructure: Updates & Impact
- Sarah Biber, PhD
- Study Updates
- Erin Chin
- CLARiTI National Inclusion and Engagement Plan
- Ozioma Okonkwo, PhD
- Scientific Impact of CLARiTI
- Elizabeth Mormino, PhD, Sterling Johnson, PhD
- Infrastructure: Updates & Impact
- Sarah Biber, PhD
- Study Updates
- Erin Chin
- CLARiTI National Inclusion and Engagement Plan
- Ozioma Okonkwo, PhD